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About
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
What they do
Who they help
How they help
Where they work
Finances
- £13,252
- Income
- £15,824
- Spending
- 5
- Trustees
Financial year ending 31 January 2025, from the Charity Commission register.