Charity Information
XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.
Who the charity helps
- People With Disabilities
How the charity helps
- Provides Advocacy / Advice / Information
What the charity does
- The Advancement Of Health Or Saving Of Lives
Areas this charity operates
Total Income
Financial year ending 31st Jan 2025
Total Expenditure
Financial year ending 31st Jan 2025
Trustees
Upcoming Events
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