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About
The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.
What they do
Who they help
How they help
Where they work
Finances
- £20,076
- Income
- £38,915
- Spending
- 13
- Trustees
Financial year ending 5 April 2025, from the Charity Commission register.