This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
Help, encourage and assist those with PXE and their family members.Heighten the awareness of PXE amongst the medical community, support services and the general public.Link members with each other for mutual support and exchange of ideas.Provide information on the various aspects of PXE.Hold meetings to which all members, their families and friends are invited.
What they do
Who they help
How they help
Where they work
Finances
- £1,353
- Income
- £0
- Spending
- 2
- Trustees
Financial year ending 5 April 2025, from the Charity Commission register.