Charity Information
OUR MAIN AIM IS TO PROVIDE SUPPORT AAND INFORMATION FOR FAMILIES AFFECTED BY THE SEVERE FORM OF THE DISEASE CALLED MALIGNANT INFANTILE OSTEOPETROSIS. WE ALSO PUT FAMILIES IN TOUCH WITH OTHER AFFECTED FAMILIES, ARRANGE MEETINGS TO DISCUSS RELEVANT ISSUES AND RESEARCH AND DEVELOPMENTS ETC. PROVIDE SMALL GRANTS AND SUPPORT RESEARCH INTO THE DISEASE.
Who the charity helps
- Children / Young People
- Other Defined Groups
- People With Disabilities
What the charity does
- Disability
- General Charitable Purposes
- The Advancement Of Health Or Saving Of Lives
How the charity helps
- Makes Grants To Individuals
- Makes Grants To Organisations
- Provides Advocacy / Advice / Information
- Sponsors Or Undertakes Research
Areas this charity operates
£716.00
Total Income
Financial year ending 5th Apr 2024
£1,360.00
Total Expenditure
Financial year ending 5th Apr 2024
6
Trustees
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