This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
We fund research with the aim of improving clinical management, developing treatments, and finding a cure for rare, terminal paediatric mitochondrial diseases, such as Alpers-Huttenlocher Syndrome. We raise awareness among the public and healthcare professionals through events and training and support affected families with information, services, resources, and financial aid.
What they do
Who they help
How they help
Where they work
Finances
- £99,941
- Income
- £15,436
- Spending
- 5
- Trustees
Financial year ending 4 April 2025, from the Charity Commission register.