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About
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
What they do
Health
Who they help
Disabled people
How they help
Provides advice and information
Provides services
Where they work
Finances
- £20,777
- Income
- £25,212
- Spending
- 3
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.