This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
What they do
Who they help
How they help
Where they work
Finances
- £42,754
- Income
- £57,289
- Spending
- 3
- Trustees
Financial year ending 30 September 2025, from the Charity Commission register.