This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
We provide accurate information and a wide range of support services to anyone who is affected by spinal muscular atrophy, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.
What they do
Disability
Health
Who they help
Other specific groups
Disabled people
How they help
Gives grants to individuals
Provides advice and information
Provides services
Funds or carries out research
Where they work
Finances
- £1,623,545
- Income
- £1,359,898
- Spending
- 14
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.