This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
What they do
Who they help
How they help
Where they work
Finances
- £54,760
- Income
- £65,637
- Spending
- 3
- Trustees
Financial year ending 31 October 2024, from the Charity Commission register.