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About
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
What they do
Who they help
How they help
Where they work
Finances
- £37,103
- Income
- £35,758
- Spending
- 5
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.