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About
Support & advice via telephone helplines, information on diagnoses & treatment, putting families in touch with others with similar experiences through regional support groups, updates & ongoing contact via regular members newsletters, education events for families to meet & learn from medical experts, raising the profile of these conditions etc., etc.,
What they do
Who they help
How they help
Where they work
Finances
- £576,612
- Income
- £621,672
- Spending
- 6
- Trustees
Financial year ending 31 December 2024, from the Charity Commission register.