Charici Claim Your Charity Charity Login

International Niemann-Pick Disease Registry

Charity Number 1175311

Charity Information

The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.

Visit Website

How the charity helps

  • Acts As An Umbrella Or Resource Body
  • Provides Services

What the charity does

  • Education / Training
  • The Advancement Of Health Or Saving Of Lives

Who the charity helps

  • Other Defined Groups

Areas this charity operates

Gallery

£447,821.00
Total Income
Financial year ending 31st Mar 2025
£368,458.00
Total Expenditure
Financial year ending 31st Mar 2025
3
Trustees

Upcoming Events

    There are currently no upcoming events for International Niemann-Pick Disease Registry listed on Charici. Check the charity's official website for more information.

Donate

Gift Aid

Volunteering

International Niemann-Pick Disease Registry is accepting volunteers. Please review the official charity website or contact them using the details on this page for more information.

Trustees

International Niemann-Pick Disease Registry | Charici

JAMES EDWARD GREEN

Appointed 9 years ago
International Niemann-Pick Disease Registry | Charici

TONI MATHIESON

Appointed 9 years ago
International Niemann-Pick Disease Registry | Charici

TARAKEGN HIWOT

Appointed 9 years ago