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About
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
What they do
Who they help
How they help
Where they work
Finances
- £447,821
- Income
- £368,458
- Spending
- 3
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.