This profile was created from public Charity Commission data under the Open Government Licence v3.0. Charici is independent and not affiliated with the Charity Commission or any listed charity. Charities can claim and edit their profile for free; claimed profiles show a green tick. Read how we handle personal data in our privacy policy.
About
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
What they do
Who they help
How they help
Where they work
Finances
- £54,779
- Income
- £75,014
- Spending
- 4
- Trustees
Financial year ending 30 April 2025, from the Charity Commission register.