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About
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
What they do
General charitable purposes
Health
Who they help
Children and young people
How they help
Gives grants to individuals
Where they work
Finances
- £8
- Income
- £0
- Spending
- 2
- Trustees
Financial year ending 20 July 2025, from the Charity Commission register.