Charity Information
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
Who the charity helps
- Children / Young People
- People With Disabilities
What the charity does
- Disability
How the charity helps
- Provides Advocacy / Advice / Information
Areas this charity operates
Total Income
Financial year ending 31st Aug 2024
Total Expenditure
Financial year ending 31st Aug 2024
Trustees
Upcoming Events
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