Charity Information
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
Who the charity helps
- Children / Young People
- Other Defined Groups
- People With Disabilities
How the charity helps
- Other Charitable Activities
- Provides Advocacy / Advice / Information
- Sponsors Or Undertakes Research
What the charity does
- The Advancement Of Health Or Saving Of Lives
Areas this charity operates
Total Income
Financial year ending 31st Mar 2025
Total Expenditure
Financial year ending 31st Mar 2025
Trustees
Upcoming Events
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