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About
To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general
What they do
Who they help
How they help
Where they work
Finances
- £34,431
- Income
- £19,238
- Spending
- 8
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.