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About
We are a registered charity aimed at providing support, raising awareness and funding medical research for effective treatments for CLCN4. CLCN4 is a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly.
What they do
General charitable purposes
Health
Who they help
The general public
How they help
Gives grants to organisations
Funds or carries out research
Where they work
Finances
- £184,961
- Income
- £197,019
- Spending
- 6
- Trustees
Financial year ending 31 December 2025, from the Charity Commission register.