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About
To provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research.
What they do
Disability
Health
Who they help
Disabled people
The general public
How they help
Supports other charities
Provides advice and information
Funds or carries out research
Where they work
Finances
- £104,922
- Income
- £10,000
- Spending
- 7
- Trustees
Financial year ending 5 April 2025, from the Charity Commission register.