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About
Organising & participating in conferences, seminars, workshops etc for health professionals & researchers; organising conferences for ciliopathy support groups; publishing information & educational materials; promoting nationally & internationally the interests of people with ciliopathies; encouraging integrated health & social care; promoting patient involvement in research/clinical management.
What they do
Who they help
How they help
Where they work
Finances
- £1,689
- Income
- £10,352
- Spending
- 8
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.