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About
Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research.
What they do
Disability
Health
Who they help
Disabled people
How they help
Provides advice and information
Funds or carries out research
Where they work
Finances
- £53,629
- Income
- £47,139
- Spending
- 9
- Trustees
Financial year ending 31 December 2025, from the Charity Commission register.