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About
To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition.
What they do
Disability
Who they help
Children and young people
Other charities and voluntary groups
Specific ethnic or racial groups
Disabled people
How they help
Gives grants to organisations
Provides advice and information
Provides services
Where they work
Finances
- £60,140
- Income
- £29,130
- Spending
- 9
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.