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About
CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.
What they do
Who they help
How they help
Where they work
Finances
- £181,873
- Income
- £231,715
- Spending
- 7
- Trustees
Financial year ending 31 December 2024, from the Charity Commission register.