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Cambridge Rare Disease Network

Charity Number 1166365

Charity Information

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

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How the charity helps

  • Acts As An Umbrella Or Resource Body
  • Provides Advocacy / Advice / Information
  • Provides Services
  • Sponsors Or Undertakes Research

Who the charity helps

  • Children / Young People
  • Other Charities Or Voluntary Bodies
  • People With Disabilities
  • The General Public / Mankind

What the charity does

  • Disability
  • Education / Training
  • The Advancement Of Health Or Saving Of Lives

Areas this charity operates

£181,873.00
Total Income
Financial year ending 31st Dec 2024
£231,715.00
Total Expenditure
Financial year ending 31st Dec 2024
7
Trustees

Upcoming Events

    There are currently no upcoming events for Cambridge Rare Disease Network listed on Charici. Check the charity's official website for more information.

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Trustees

Cambridge Rare Disease Network | Charici

SUSAN BERRY

Appointed 7 years ago
Cambridge Rare Disease Network | Charici

EMMA GREEN

Appointed 3 years ago
Cambridge Rare Disease Network | Charici

LORETTA MACINNES

Appointed 3 years ago
Cambridge Rare Disease Network | Charici

DR CATHERINE O'SULLIVAN

Appointed 1 year ago
Cambridge Rare Disease Network | Charici

RUTH DIAZARAQUE

Appointed 1 year ago
Cambridge Rare Disease Network | Charici

BILLY MICHAEL LUCAS

Appointed 1 year ago
Cambridge Rare Disease Network | Charici

WILLIAM HENRY WADDINGTON ELDRIDGE

Appointed 8 months ago