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About
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
What they do
Disability
Education and training
Health
Who they help
Children and young people
Disabled people
How they help
Provides advice and information
Provides services
Funds or carries out research
Where they work
Finances
- £491,462
- Income
- £634,269
- Spending
- 7
- Trustees
Financial year ending 31 December 2025, from the Charity Commission register.