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About
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
What they do
General charitable purposes
Health
Who they help
Children and young people
Other charities and voluntary groups
Other specific groups
Disabled people
How they help
Gives grants to individuals
Gives grants to organisations
Provides advice and information
Provides services
Funds or carries out research
Where they work
Finances
- £58,080
- Income
- £36,586
- Spending
- 5
- Trustees
Financial year ending 31 December 2025, from the Charity Commission register.