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About
a) providing information, support and advice to people living with the Condition, their families and carers; b) advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition;c) working closely with all stakeholders to facilitate the availability of effective treatments for the Condition. d) funding and supporting research to advance scientif
What they do
How they help
Where they work
Finances
- £105,228
- Income
- £53,813
- Spending
- 6
- Trustees
Financial year ending 31 March 2025, from the Charity Commission register.