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Alstrom Syndrome Europe

Charity Number 1160362

Charity Information

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

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How the charity helps

  • Acts As An Umbrella Or Resource Body
  • Provides Advocacy / Advice / Information
  • Provides Services
  • Sponsors Or Undertakes Research

Who the charity helps

  • Children / Young People
  • People Of A Particular Ethnic Or Racial Origin
  • People With Disabilities

What the charity does

  • Disability
  • General Charitable Purposes
  • Recreation
  • The Advancement Of Health Or Saving Of Lives

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£0.00
Total Income
Financial year ending 5th Apr 2024
£732.00
Total Expenditure
Financial year ending 5th Apr 2024
6
Trustees

Upcoming Events

    There are currently no upcoming events for Alstrom Syndrome Europe listed on Charici. Check the charity's official website for more information.

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Trustees

Alstrom Syndrome Europe | Charici

DR HIWOT

Appointed 11 years ago
Alstrom Syndrome Europe | Charici

DR MAFFEI

Appointed 11 years ago
Alstrom Syndrome Europe | Charici

PROFESSOR DIANA VALVERDE

Appointed 10 years ago
Alstrom Syndrome Europe | Charici

DR SELMA DUZENLI

Appointed 8 years ago
Alstrom Syndrome Europe | Charici

BERND ROSENBICHLER

Appointed 11 months ago
Alstrom Syndrome Europe | Charici

KERRY LEESON-BEEVERS

Appointed 1 year ago