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About
Working in partnership with patients and the scientific community we will:- Facilitate a support network for individuals and families- Be a conduit for high quality, accessible information- Raise the profile of Alport Syndrome- Contribute to the international research agenda- Collaborate on the development of a UK patient registry and alliance of international patient registries.
What they do
Who they help
How they help
Where they work
Finances
- £178,592
- Income
- £166,679
- Spending
- 7
- Trustees
Financial year ending 1 August 2025, from the Charity Commission register.