Timothy Syndrome Alliance (Tsa)

Registered charity 1185523 Across England

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About

Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.

Visit timothysyndrome.org

What they do

Disability Health

Who they help

Children and young people Disabled people

How they help

Provides advice and information Provides services Funds or carries out research

Where they work

Finances

£205,304
Income
£128,996
Spending
9
Trustees

Financial year ending 30 November 2025, from the Charity Commission register.