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About
We help families of babies born with Blepharophimosis, Ptosis and Marcus Gunn Jaw Winking Syndrome in many ways. We host regular online meetings for families where they can share their stories and get information. We raise money to help families get crucial surgery when they cannot afford it. We build a community and provide support for these rare conditions.
What they do
Who they help
How they help
Where they work
Finances
- £14,394
- Income
- £7,256
- Spending
- 4
- Trustees
Financial year ending 31 October 2025, from the Charity Commission register.