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The Ehlers-Danlos Society

Charity Number 1180984

Charity Information

Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.

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What the charity does

  • Disability
  • Education / Training

Who the charity helps

  • People With Disabilities

How the charity helps

  • Provides Advocacy / Advice / Information
  • Provides Services
  • Sponsors Or Undertakes Research

Areas this charity operates

£1,552,526.00
Total Income
Financial year ending 30th Apr 2025
£1,409,241.00
Total Expenditure
Financial year ending 30th Apr 2025
11
Trustees

Upcoming Events

    There are currently no upcoming events for The Ehlers-Danlos Society listed on Charici. Check the charity's official website for more information.

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Volunteering

The Ehlers-Danlos Society is accepting volunteers. Please review the official charity website or contact them using the details on this page for more information.

Trustees

The Ehlers-Danlos Society | Charici

SUE HASKEL

Appointed 6 years ago
The Ehlers-Danlos Society | Charici

DR MELANIE JANE MACLEOD

Appointed 6 years ago
The Ehlers-Danlos Society | Charici

SUSAN HAWKINS

Appointed 6 years ago
The Ehlers-Danlos Society | Charici

DR WOODROW GANDY

Appointed 6 years ago
The Ehlers-Danlos Society | Charici

JOHN B ZONARICH

Appointed 5 years ago
The Ehlers-Danlos Society | Charici

ROBERT RUBIN

Appointed 5 years ago
The Ehlers-Danlos Society | Charici

DR AKILAH CADET

Appointed 2 years ago
The Ehlers-Danlos Society | Charici

ANOUSHE HUSAIN

Appointed 2 years ago
The Ehlers-Danlos Society | Charici

FRANCES ANNE FITZGERALD

Appointed 2 years ago
The Ehlers-Danlos Society | Charici

AISLING GREEN

Appointed 3 years ago
The Ehlers-Danlos Society | Charici

COLIN O'DONNELL

Appointed 8 months ago