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About
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
What they do
Disability
Education and training
Health
Who they help
Children and young people
Older people
Disabled people
The general public
How they help
Provides advice and information
Provides services
Funds or carries out research
Where they work
Finances
- £367,726
- Income
- £294,929
- Spending
- 8
- Trustees
Financial year ending 30 June 2025, from the Charity Commission register.