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To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and resear...

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The NUHA Foundation runs a free annual writing competition, known as the Blogging Prizes. This is designed to promote thinking and sharing around ques...

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Future Choices is an advocacy organisation working with groups seeking an end to non-therapeutic genital surgery on children whether they are intersex...

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The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as...